Health Aware: Littlest newborn now 10 years old

Picture a typical fifth-grade girl. One Direction, Girl Scouts, American Girl dolls.

Zoe Koz likes all of the above. She has braces, rolls her eyes at her parents’ jokes and loves to swim. Koz, 10, of Plainfield, epitomizes a fifth-grader in almost every way — except that she happens to be the physical size of an average first-grader.

She’s come a long way from January 2004, when she was fighting for her life in the Edward Hospital Newborn Intensive Care Unit. At the time, born prematurely weighing 10.8 ounces, Zoe was the third-smallest baby ever born in the U.S. and the ninth-smallest in the world.

While Zoe might feel and act like a typical 10-year-old now, the fact that she not only survived infancy but has consistently grown and developed is not lost on her mother, Tammy Koz.

For Tammy, it’s like Zoe’s birth and five-month stay in the NICU just happened.

“She’s really taught me not to take things for granted and to just really appreciate every day,” Tammy said. “I know how lucky I am to have her.”

When she was 18 weeks into her pregnancy, Tammy and her husband, Eric Koz, were given heartbreaking news about their girl: she was barely growing. They were given the option of delivering, with virtually no chance of survival, or waiting, in hopes that Zoe would mature enough to survive outside the womb even though they risked her dying in the womb.

According to Bob Covert, medical director of Edward’s Newborn Intensive Care Unit and a neonatologist with DuPage Neonatology Associates, Zoe’s tiny size at birth was because of a lack of blood supply from Tammy, who suffers from lupus, an autoimmune disease that causes inflammation of joints, tendons, skin and other connective tissues and organs. The lupus is believed to have caused her placenta to improperly develop.

Babies are typically born 37 to 40 weeks into a pregnancy, but Zoe could not wait that long.

“We went in every other day to make sure there was still a heartbeat,” Tammy said. “When we got to 27 weeks, we went in for an ultrasound and the baby was still alive. They said, ‘We’ve risked this long enough.’”

Zoe was born by Cesarean section Jan. 6, 2004. She was frighteningly small. Her parents could slide Eric’s wedding ring up her bicep. Yet, by the end of January, she was able to grasp her mother’s fingertip with one tiny hand.

“Everyone has to understand that Zoe is incredibly unique,” Dr. Covert said. “She was born at 27 weeks, but because of her growth-restricting condition, she was smaller than a 23- or 24-week-old.”

Her size also created technical problems — feeding tubes, breathing tubes and IVs are not made for babies that tiny, Covert said.

“In babies that small with specialized conditions like Zoe, there are few survivors,” Covert said. “If they survive, they often have lifelong disabilities or illness.”

Fortunately for the Koz family, Zoe’s stay in the NICU was relatively uneventful. Scary? Yes, Tammy says, but Zoe steadily outgrew the devices keeping her alive. The tiny girl finally came home June 9, 2004, an event celebrated by the Koz family as well as her caregivers at Edward.

Zoe has been growing ever since. The only lingering health issues require her to use hearing aids and glasses.

“She is a very normal, pint-sized, fun-loving girl who does well at school, socially and academically,” said Zoe’s pediatrician since birth Chad Olsen, of Millennium Pediatrics in Naperville. “She brightens up the office when she comes in with her sister and her family.”

While there’s no proof that a baby’s personality can give them the fight to pull through a difficult infancy, Covert said he believes it plays a part.

“Zoe was a very spunky baby, and there were a lot of maturity factors about her that surprised us,” he said.

Zoe also got a head start by receiving quality medical care before she was born, such as steroids to boost her lung maturity.

Tammy and Eric had a second daughter, Faith, now 5, who Tammy carried to full term with no complications.

Edward Hospital has a Level III NICU and Obstetrical Service, the highest designation by the state of Illinois. That means Edward can treat the sickest and most fragile newborns.

Edward’s NICU, which opened 22 private patient rooms in January 2013, features space, comfort and privacy for treatment and consultation with doctors and nurses. The unit includes two sets of adjoining rooms that can accommodate twins, so parents can be near their babies. One larger room can accommodate triplets.

NICU families also have access to the Ronald McDonald Family Room, the first of its kind in Illinois, a place for parents to rest and regroup when they’re at Edward with their sick children. The room has a living room, relaxation areas, kitchen, two computer stations with Internet access, two sleeping rooms, showers and a playroom for patients and siblings.

For more information about the Edward Hospital Family Birth Center, including high-risk pregnancies and the Newborn Intensive Care Unit, visit www.edward.org/familybirthcenter.

Health Aware is a weekly column courtesy of Edward Hospital.

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2 Comments

  • Deborah

    I am so glad that this beautiful little girl not only survived, but has thrived. But to me, it was incredibly selfish of the parents to have birth children, knowing the mother's condition. There are so many unwanted babies and children to adopt. All that pain and misery that baby had to go through was unnecessary. I understand the feeling of wanting your own blood kids, but to put an infant through this is just selfish.

    2014-08-21 07:14:05 | Reply
  • name

    glad she's doing well

    2014-08-20 19:05:56 | Reply



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